Genetic Privacy

Publication Title: 
Kennedy Institute of Ethics Journal

Religious discussion of human organs and tissues has concentrated largely on donation for therapeutic purposes. The retrieval and use of human tissue samples in diagnostic, research, and education contexts have, by contrast, received very little direct theological attention. Initially undertaken at the behest of the National Bioethics Advisory Commission, this essay seeks to explore the theological and religious questions embedded in nontherapeutic use of human tissue.

Author(s): 
Campbell, Courtney S.
Publication Title: 
Ethics & Medicine: A Christian Perspective on Issues in Bioethics

Catholic movements within the centre of Roman Catholic doctrine recently have discussed Trinitarian theology as applied to sciences, arts, economics, health and other social areas. We explore the possibilities Trinitarian theology offers to bioethical debate, concentrating particularly on genetic screening and testing. It is important therefore to analyse the philosophical implications of this approach onto the bioethical world, where much disagreement occurs on fundamental issues.

Author(s): 
Mallia, Pierre
ten Have, Henk
Publication Title: 
New Genetics and Society

This article considers how we should frame the ethical issues raised by current proposals for large-scale genebanks with on-going links to medical and lifestyle data, such as the Wellcome Trust and Medical Research Council's 'UK Biobank'. As recent scandals such as Alder Hey have emphasised, there are complex issues concerning the informed consent of donors that need to be carefully considered.

Author(s): 
Williams, Garrath
Schroeder, Doris
Publication Title: 
Journal International De Bioethique = International Journal of Bioethics

Together with the completion of the Human Genome Project, biomedical research has marched into the "Post-Genomic Era." In order to take advantage of these extracted gene related information extensively and precisely so as to realize the human being's biological phenomena as well as the mechanism of pathogenesis, consequentially, large scale sample collection of different geological areas and/or ethic group becomes necessary for the future population based genetic research of a country and, in turn, the construction of population-based genetic database (Biobank).

Author(s): 
Fan, Chien Te
Wu, Chunyan
Shi, Zhiyuan
Publication Title: 
Canadian Journal on Aging = La Revue Canadienne Du Vieillissement

ABSTRACTSuccessful recruitment and retention for population-based longitudinal studies requires understanding facilitators and barriers to participation. This study explored Canadians' views regarding one such study, the proposed Canadian Longitudinal Study on Aging (CLSA). Focus groups of participants > or =40 years of age were held in six proposed CLSA data collection sites (Halifax, Montreal, Hamilton, Winnipeg, Calgary, and Vancouver) to discuss participating in a long-term study of healthy aging. There was fundamental support for longitudinal research on health and aging.

Author(s): 
Kirkland, Susan A.
Raina, Parminder S.
Wolfson, Christina
Strople, Geoff
Kits, Olga
Dukeshire, Steven
Angus, Camille L.
Szala-Meneok, Karen
Uniat, Jennifer
Keshavarz, Homa
Furlini, Linda
Pelletier, AmÈlie
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