Muscular Dystrophies

Publication Title: 
Developmental Medicine and Child Neurology

Many children with muscular dystrophy are overweight, and although weight control is pursued in some centres it is unusual to encourage severe dietary restriction for fear that it might lead to accelerated loss of muscle. In this study, two overweight boys with muscular dystrophy were monitored by whole-body nitrogen balance, total body potassium, strength and functional measurements during calorie restriction.

Author(s): 
Edwards, R. H.
Round, J. M.
Jackson, M. J.
Griffiths, R. D.
Lilburn, M. F.
Publication Title: 
Clinical Nursing Research

A chronic disorder affects all members of the family in various ways. The aim of this study is to elucidate the next of kin's (N= 36) experiences when an adult family member has muscular dystrophy. The relationships were partner (36%, n= 14), parent (18%, n= 7), child (21%, n= 8), sibling (15%, n= 6), and other relative (3%, n= 1). Latent content analysis is employed and involves an interpretation of the interviewtext.

Author(s): 
Bostrˆm, Katrin
Ahlstrˆm, Gerd
Sunvisson, Helena
Publication Title: 
Deutsche Medizinische Wochenschrift (1946)

HISTORY AND CLINICAL FINDINGS: A 39-year-old woman with a history of slowly progressive muscular dystrophia was transferred to us for further evaluations of a hypochromic, microcytic anaemia. The patient complained about progressive muscle weakness, loss of appetite and constipation, sleep disorders as well as muscle and back pain. Clinical examination revealed a tetraparesis without any detectable muscle reflexes and atrophic muscles of the extremities. A bilateral radial paresis was found with a loss of power.

Author(s): 
Weide, R.
Engelhart, S.
Färber, H.
Kaufmann, F.
Heymanns, J.
Köppler, H.
Publication Title: 
Zhurnal Nevropatologii I Psikhiatrii Imeni S.S. Korsakova (Moscow, Russia: 1952)

The paper summarizes experience in treating 306 patients with progressive muscular dystrophy during different phases of the disease. The treatment was made with due consideration for a disturbed protein metabolism, a decreased permeability of the membrane in muscular filaments, a normalization of the metabolic product supply from the blood, improvement of the blood flow and cardio-vascular and respiratory insufficiency.

Author(s): 
Badalian, L. O.
Dunaevskaia, G. N.
Sitnikov, V. F.
Publication Title: 
Disability and Rehabilitation

Muscular dystrophy patients have often experimented with different alternative or complementary methods since there is at present no curative medical treatment. PURPOSE: To evaluate, through qualitative analysis of interview data, the subjective experiences of twenty-eight patients with muscular dystrophy practising a complementary method, qigong. METHODS: Semi-structured qualitative interviews were performed and data were analysed by a method inspired by Grounded Theory.

Author(s): 
Wenneberg, Stig
Gunnarsson, Lars-Gunnar
Ahlström, Gerd
Publication Title: 
Disability and Rehabilitation

PURPOSE: To quantitatively evaluate the effects of qigong in patients with muscular dystrophy. METHODS: Thirty-six patients with muscular dystrophy were assigned to either a treatment or comparison group, by means of a stratified randomization procedure. The intervention period lasted for 3 months. Balance and respiratory function were assessed by means of Berg's Balance Scale and an electronic spirometer, respectively.

Author(s): 
Wenneberg, Stig
Gunnarsson, Lars-Gunnar
Ahlström, Gerd
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