Exploring the spiritual and psychological realms is more difficult than simply addressing the physical dimension of palliative care. Knowing oneself is essential to align one's work within the hospice philosophy. Giving and receiving love are equally important. This case study examines importance of self-awareness in managing escalating suffering at the end of life.
BACKGROUND: Hospital is the most common place of cancer death but concerns regarding the quality of end-of-life care remain. AIM: Preliminary assessment of the effectiveness of the Liverpool Care Pathway on the quality of end-of-life care provided to adult cancer patients during their last week of life in hospital. DESIGN: Uncontrolled before-after intervention cluster trial. SETTINGS/PARTICIPANTS: The trial was performed within four hospital wards participating in the pilot implementation of the Italian version of the Liverpool Care Pathway programme.
PURPOSE OF REVIEW: Studies in different countries and settings of care have reported the quality of care for the dying patients as suboptimal. Care pathways have been developed with the aim of ensuring that dying patients and their family members received by health professionals the most appropriate care. This review presents and discusses the evidence supporting the effectiveness of the end-of-life care pathways. RECENT FINDINGS: Two Cochrane systematic reviews updated at June 2013 did not identify studies that met minimal criteria for inclusion.
OBJECTIVES: To describe the clinical encounters that occur when a palliative care team provides patient care and the features that influence these encounters and indicate whether they are favorable or unfavorable depending on the expectations and feelings of the various participants. METHODS: A qualitative case study conducted via participant observation. A total of 12 observations of the meetings of palliative care teams with patients and families in different settings (home, hospital and consultation room) were performed.
BACKGROUND: Compassion is considered an essential element in quality patient care. One of the conceptual challenges in healthcare literature is that compassion is often confused with sympathy and empathy. Studies comparing and contrasting patients' perspectives of sympathy, empathy, and compassion are largely absent.
BACKGROUND: People with dementia have been described as the 'disadvantaged dying' with poor end-of-life care. Towards the end of life, people with dementia cannot report on the care they receive. It is therefore important to talk to caregivers; however, few have explored the views about end-of-life care from the caregivers' perspective. The majority of research on family caregivers has focussed on the burden and psychological impact of caring for a relative with dementia.
Studies on the effectiveness and efficiency of palliative care (PC) services that use a methodology similar to that used by studies in other medical specialties face serious limitations, since the goals of PC are substantially different. Qualitative research methods can make an important contribution to our understanding of the features of palliative care (PC) that are most relevant to patients and their relatives. The goal of this study was to understand the reasons behind the gratitude shown in letters from bereaved relatives sent to two PC units, one in Spain and one in Portugal.
Home paracentesis is a relatively simple and safe. Applied in the field of palliative home care by primary care physicians significantly increases patient comfort and gratitude from both patient and family, and avoids continuous visits to hospital emergency services to perform this technique on a regular basis. The patient is terminal, usually with pain, with distant metastases and multiple symptoms, where transfers by ambulance, waiting times, continuous admissions and discharges, have a big impact.
AIM: The aim of this study was to illuminate the meanings of district nurses' lived experiences of meeting significant others in the home when giving advanced home care to patients. METHODS: The data was collected through 10 audio-taped narrative focus-group interviews with 36 district nurses and interpreted using a phenomenological hermeneutic approach. FINDINGS: Three themes emerged. The first theme, Feeling close, consists of three subthemes: Being available, Sharing understanding and Being aware.
BACKGROUND: Relatives looking after a terminally ill family member at home face numerous challenges. Studies into relatives' experiences of home caregiving have been criticised for their descriptive nature and lack of theoretical underpinnings. AIM: To explore the emotional challenges faced by home caregivers, and their experiences of healthcare professionals, from the perspective of existential psychology. DESIGN: A qualitative study using semi-structured interviews. Transcripts were analysed thematically using the Framework approach.