Palliative Care

Publication Title: 
BMC palliative care

BACKGROUND: Dignity Therapy is a brief psychotherapy that can enhance a sense of legacy while addressing the emotional and existential needs of patients receiving hospice or palliative care. In Dignity Therapy, patients create a formalized "legacy" document that records their most cherished memories, their lessons learned in life, as well as their hopes and dreams for loved ones in the future. To date, this treatment has been studied for its impact on mitigating distress within hospice and palliative care populations and has provided mixed results.

Author(s): 
Montross-Thomas, Lori P.
Irwin, Scott A.
Meier, Emily A.
Gallegos, Jarred V.
Golshan, Shahrokh
Roeland, Eric
McNeal, Helen
Munson, Diane
Rodseth, Laura
Publication Title: 
Nursing Ethics

In this article we discuss generosity, a virtue that has received little attention in relation to nursing practice. We make a distinction between material generosity and generosity of spirit. The moral imagination is central to our analysis of generosity of spirit. We discuss data taken from a team meeting and identify the components of generosity, for example, the role of the moral imagination in interrupting value judgements, protecting the identity of the chronically ill patient through use of the psychosocial format, and displaying empathetic maturity.

Author(s): 
Arber, Anne
Gallagher, Ann
Publication Title: 
Recherche En Soins Infirmiers

With the advent of the palliative care defined as "active care delivered in a global approach of the person reached affected by a serious, evolutionary or terminal illness" (SFAP, 1996), the accompaniment found its just place in the approach of care. The physical, psychic, moral, social and spiritual dimensions are collectively considered in the cultural context of the well-kept person. Afterward the concept to take care was developed and found its relevant place in a more and more technical world.

Author(s): 
Furstenberg, CÈcile
Publication Title: 
International Journal of Qualitative Studies on Health and Well-Being

Registered nurses (RNs) working in homecare encounter severely ill and palliative patients whose expressions may cause ethical challenges and influence their daily work. The aim of this qualitative study was to illuminate and interpret the meaning of nurses' lived experiences when meeting these patients. Narrative interviews were conducted with 10 RNs working in home nursing care. These interviews were audiotaped and transcribed verbatim to a text and interpreted by a phenomenological-hermeneutic method inspired by Ricoeur.

Author(s): 
Devik, Siri Andreassen
Enmarker, Ingela
Hellzen, Ove
Publication Title: 
Journal of Palliative Care

Two studies were conducted to examine people's motives for joining a palliative care volunteer program. To generate a pool of reasons for becoming a palliative care volunteer, previous studies of motivations relevant to palliative care were reviewed and interviews were conducted with 15 palliative care volunteers (Study 1). Combining the literature review and interviews, a total of 22 distinct reasons for volunteering were identified and used to create an Inventory of Motivations for Palliative Care Voluntarism (IMPCV).

Author(s): 
Claxton-Oldfield, Stephen
Jefferies, Joanna
Fawcett, Catherine
Wasylkiw, Louise
Publication Title: 
Death Studies

In this commentary on Werth's (this issue) article, the author attempts to continue the work of "meaning making" by describing 10 lessons that were evident to him, based on 25 years of experience as an end-of-life researcher and clinician.

Author(s): 
Larson, Dale G.
Publication Title: 
Internal Medicine Journal

BACKGROUND: This project was conducted to investigate whether the concerns that researchers have about including terminally ill patients in research were shared by a sample of terminally ill patients. METHODS: Twenty-two patients admitted to a hospice participated in semistructured interviews; 18 patients had advanced malignant disease and 13 were women; their ages ranged from 28 to 93 years. The interview transcripts were analysed for common themes and particular attention was paid to the reasons patients gave for their views. RESULTS: All the patients wanted to participate in research.

Author(s): 
Terry, W.
Olson, L. G.
Ravenscroft, P.
Wilss, L.
Boulton-Lewis, G.
Publication Title: 
Health and Quality of Life Outcomes

BACKGROUND: The construct "meaning-in-life" (MiL) has recently raised the interest of clinicians working in psycho-oncology and end-of-life care and has become a topic of scientific investigation. Difficulties regarding the measurement of MiL are related to the various theoretical and conceptual approaches and its inter-individual variability. Therefore the "Schedule for Meaning in Life Evaluation" (SMiLE), an individualized instrument for the assessment of MiL, was developed. The aim of this study was to evaluate MiL in a representative sample of the German population.

Author(s): 
Fegg, Martin J.
Kramer, Mechtild
Bausewein, Claudia
Borasio, Gian D.
Publication Title: 
Journal of Pain and Symptom Management

The aim of this study was to explore patients' and carers' preferences and expectations regarding their contribution to research in palliative care through the use of qualitative interviews. Data were collected in the context of two studies exploring the experiences of care of palliative care patients and carers. Both studies recorded the recruitment process, numbers of patients or carers accepting and declining, and the circumstances of interviews. Participants were asked about their motivation to participate in research.

Author(s): 
Gysels, Marjolein
Shipman, Cathy
Higginson, Irene J.
Publication Title: 
Journal of Palliative Medicine

INTRODUCTION: The concept of hope in palliative care is an important and neglected area of research. Amyotrophic lateral sclerosis (ALS), a progressive degenerative motor neuron disease, offers an excellent opportunity to study this construct as the illness is virtually always fatal. Our research explored the meaning of hope in individuals with ALS. PATIENTS AND METHODS: Sixteen patients (13 males and 3 females; mean age, 54) were interviewed during routine clinic visits to the Forbes Norris MDA/ALS Research Center at California Pacific Medical Center, San Francisco.

Author(s): 
Fanos, Joanna H.
Gelinas, Deborah F.
Foster, Reed S.
Postone, Norman
Miller, Robert G.

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