Palliative Care

Publication Title: 
Journal of Medical Ethics

The difficulties of undertaking good quality effectiveness research in palliative medicine are well documented. Much of the ethical literature in this area focuses on the vulnerability of the palliative care population. It is clear that a wider ethical approach will need to be used to justify research in the terminally ill. Some themes of ethical thought are underutilised in considering the ethics of palliative care research.

Author(s): 
Keeley, P. W.
Publication Title: 
Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer

INTRODUCTION: Research in palliative care patients has been controversial and is often challenging. It is important to know the views of potentially eligible patients themselves in order to determine the appropriateness of research in the palliative care population and to develop realistic studies that are practical and achievable in this population. This systematic review aims to identify the views of palliative care patients and their families towards research, the factors that are important when considering participation, and the types of research trial they would support or reject.

Author(s): 
White, Clare
Hardy, Janet
Publication Title: 
Journal of Pain and Symptom Management

CONTEXT: The construct "meaning in life" (MiL) has recently raised the interest of clinicians working in psycho-oncology and end-of-life care and has become a topic of scientific investigation. OBJECTIVES: The aim of this study was to compare MiL in palliative care (PC) patients with a representative sample of the German population. METHODS: In this cross-sectional study, all PC patients treated in the PC inpatient unit and through the PC consult service at Ludwig-Maximilians-University Hospital, Munich, from May 2005 to July 2007 were eligible to participate.

Author(s): 
Fegg, Martin Johannes
Brandst‰tter, Monika
Kramer, Mechtild
Kˆgler, Monika
Haarmann-Doetkotte, Sigrid
Borasio, Gian Domenico
Publication Title: 
The American Journal of Hospice & Palliative Care

Given the essential role of volunteers in hospice palliative care, it would be beneficial to have a recruitment and retention tool that is reliable and valid. To address this gap, the current investigation sought to adapt and extend the Inventory of Motivations for Palliative Care Volunteerism (IMPCV) of Claxton-Oldfield, Jefferies, Fawcett, Wasylkiw, and Claxton-Oldfield.(1) The purpose of study 1 was to address methodological concerns of the IMPCV using 141 undergraduate students.

Author(s): 
Claxton-Oldfield, Stephen
Wasylkiw, Louise
Mark, Mariko
Claxton-Oldfield, Jane
Publication Title: 
International Journal of Nursing Practice

This paper aims to explicate the essence of spiritual engagement from the perspective of palliative care clients and their caregivers. Van Manen's hermeneutic phenomenological approach guided this study. In-depth interviews of 14 rural Australian participants with experience of a life-limiting condition provided rich discourse of the lived experience of spiritual engagement. This research highlights spiritual engagement represented in a relational model developed from a creative synthesis of the emerging themes.

Author(s): 
Penman, Joy
Oliver, Mary
Harrington, Ann
Publication Title: 
Supportive Care in Cancer: Official Journal of the Multinational Association of Supportive Care in Cancer

PURPOSE: Providing care for terminally ill family members places an enormous burden on informal caregivers. Meaning in life (MiL) may be a protective factor, but is jeopardised in caregiving and bereavement. This study evaluates the following questions: To what extent do bereaved informal caregivers of palliative care (PC) patients experience meaning in their lives? What differences emerge in carers compared to the general German population? How does MiL relate to well-being in former caregivers?

Author(s): 
Brandst‰tter, Monika
Kˆgler, Monika
Baumann, Urs
Fensterer, Veronika
K¸chenhoff, Helmut
Borasio, Gian Domenico
Fegg, Martin Johannes
Publication Title: 
Journal of Pain and Symptom Management

CONTEXT: Increased altruism, self-transcendence, and quests for meaning in life (MiL) have been found in palliative care (PC) patients and their families who experience the finiteness of life. Similar changes were observed in healthy subjects who were experimentally confronted with their mortality. OBJECTIVES: The study investigated how daily experiences of the transitoriness of life influence PC health care professionals' (HCPs) values, MiL, and religiousness.

Author(s): 
Fegg, Martin
L'hoste, Sibylle
Brandst‰tter, Monika
Borasio, Gian Domenico
Publication Title: 
Palliative Medicine

The delivery of spiritual and religious care has received a high profile in national reports, guidelines and standards since the start of the millennium, yet there is, to date, no recognized definition of spirituality or spiritual care nor a validated assessment tool. This article suggests an alternative to the search for a definition and assessment tool, and seeks to set spiritual care in a practical context by offering a model for spiritual assessment and care based on the individual competence of all healthcare professionals to deliver spiritual and religious care.

Author(s): 
Gordon, Tom
Mitchell, David
Publication Title: 
The American Journal of Clinical Hypnosis
Author(s): 
Sacerdote, P.
Publication Title: 
Journal of Psychosocial Nursing and Mental Health Services
Author(s): 
Zahourek, R. P.

Pages

Subscribe to RSS - Palliative Care