Patient Participation

Publication Title: 
NIH consensus and state-of-the-science statements

OBJECTIVE: To provide health care providers, patients, and the general public with a responsible assessment of currently available data on vaginal birth after cesarean (VBAC).

Author(s): 
Cunningham, F. Gary
Bangdiwala, Shrikant I.
Brown, Sarah S.
Dean, Thomas Michael
Frederiksen, Marilynn
Rowland Hogue, Carol J.
King, Tekoa
Spencer Lukacz, Emily
McCullough, Laurence B.
Nicholson, Wanda
Petit, Nancy Frances
Probstfield, Jeffrey Lynn
Viguera, Adele C.
Wong, Cynthia A.
Zimmet, Sheila Cohen
Publication Title: 
Journal of Alternative and Complementary Medicine (New York, N.Y.)

OBJECTIVES: We sought to investigate whether, and if so, how published sham-controlled trials of acupuncture report on the information given to patients about true and sham interventions. We asked acupuncture therapists to provide original patient information leaflets in order to study how interventions were described in more detail.

Author(s): 
Linde, Klaus
Dincer, Figen
Publication Title: 
International Journal of Palliative Nursing

Palliative medicine and complementary therapies (CTs) have developed within the NHS as parallel philosophies of care. As a result, the last decade has seen an increase in the integration and usage of CTs, as adjunct therapies to conventional medical treatment. Documented benefits of relaxation, decreased perception of pain, reduced anxiety and improved sense of wellbeing have been shown to enable an enhanced quality of life, where curative treatment is no longer an option. Reiki is a more recent addition to the range of CTs available to cancer patients.

Author(s): 
Burden, Barbara
Herron-Marx, Sandy
Clifford, Collette
Publication Title: 
Journal of Nursing Care Quality

Best practice guidelines can support nurses in providing consistent, evidence-based quality care. This article describes the values and beliefs underlying a best practice guideline for client-centered care and the process used by the author to translate this guideline into reflective questions specific to Therapeutic Touch practice. Applying best practice guidelines in this way, to enhance reflection on a particular aspect of practice, can "bring them to life," facilitating implementation and allowing new possibilities to emerge for improving client care.

Author(s): 
Moore, Theresa
Publication Title: 
Preventing Chronic Disease

INTRODUCTION: Recruiting participants for research studies can be challenging. Many studies fall short of their target or must prolong recruitment to reach it. We examined recruitment and retention strategies and report lessons learned in a behavioral intervention developmental trial to encourage healthy pregnancy weight gain and stress reduction in low-income overweight pregnant women.

Author(s): 
Coleman-Phox, Kimberly
Laraia, Barbara A.
Adler, Nancy
Vieten, Cassandra
Thomas, Melanie
Epel, Elissa
Publication Title: 
Health Progress (Saint Louis, Mo.)

The success of science and medical technology has led to medical brinkmanship, pushing aggressive treatment as far as it can go. But medicine lacks the precision necessary for such brinkmanship to succeed, and the resulting cycle of expectation and disappointment in technology has, in part, led to an increasing acceptance of euthanasia and assisted suicide, linked closely with advocacy for patient autonomy. At the opposite extreme lies medical vitalism, which refers to attempts to preserve the patient's life in and of itself without any significant hope for recovery.

Author(s): 
Nairn, T. A.
Publication Title: 
Public Health Genomics

Due to the lack of other treatment options, patient candidates for participation in phase I clinical trials are considered the most vulnerable, and many ethical concerns have emerged regarding the informed consent process used in the experimental design of such trials. Starting with these considerations, this nonsystematic review is aimed at analyzing the decision-making processes underlying patients' decision about whether to participate (or not) in phase I trials in order to clarify the cognitive and emotional aspects most strongly implicated in this decision.

Author(s): 
Gorini, Alessandra
Mazzocco, Ketti
Pravettoni, Gabriella
Publication Title: 
Progres En Urologie: Journal De l'Association Francaise D'urologie Et De La Societe Francaise D'urologie

Despite considerable progress, the treatment of erectile insufficiency is often difficult due to its usually multifactorial aetiology and to the fact that the 3 components of a satisfying sex life are: 1) Sufficient penile rigidity with no other associated sexual dysfunction, 2) an adapted mental state, 3) a loving relationship with the partner. All of these parameters must be taken into account to ensure a lasting success, hence the need for a global approach rather than an approach localized to the organ.

Author(s): 
Bondil, P.
BlachËre, P.
Publication Title: 
Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz

The following paper describes a model project (currently in the trial phase at one clinic) focussing on empathetic communication within the family as an essential part of the treatment of mothers suffering from breast cancer and their children in order to activate the mother's self-healing powers and at the same time to prevent the children being traumatised as a consequence of the mother's illness.

Author(s): 
von Fircks, A. Rexrodt
Publication Title: 
International Journal of Rehabilitation Research. Internationale Zeitschrift Fur Rehabilitationsforschung. Revue Internationale De Recherches De Readaptation

This study problematizes a unique therapeutic relationship in rehabilitation and how the interaction reflects the integration of rehabilitation ideology with local cultures. The data drew from a larger ethnographic study of a rehabilitation unit in Taiwan. Participants included 21 patient-caregiver pairs and their rehabilitation professionals. They participated in in-depth interviews and participant observation. A tough-love pedagogy emerged as a unique therapeutic relationship in the unit.

Author(s): 
Chang, Ling-Hui
Wang, Jye

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