Terminally Ill

Publication Title: 
The Cochrane Database of Systematic Reviews

BACKGROUND: As terminal disease progresses, health deteriorates and the end of life approaches, people may ask "Why this illness? Why me? Why now?" Such questions may invoke, rekindle or intensify spiritual or religious concerns. Although the processes by which these associations occur are poorly understood, there is some research evidence for associations that are mainly positive between spiritual and religious awareness and wellness, such as emotional health.

Author(s): 
Candy, Bridget
Jones, Louise
Varagunam, Mira
Speck, Peter
Tookman, Adrian
King, Michael
Publication Title: 
The Cochrane Database of Systematic Reviews

BACKGROUND: As terminal disease progresses, health deteriorates and the end of life approaches, people may ask "Why this illness? Why me? Why now?" Such questions may invoke, rekindle or intensify spiritual or religious concerns. Although the processes by which these associations occur are poorly understood, there is some research evidence for associations that are mainly positive between spiritual and religious awareness and wellness, such as emotional health.

Author(s): 
Candy, Bridget
Jones, Louise
Varagunam, Mira
Speck, Peter
Tookman, Adrian
King, Michael
Publication Title: 
University of Pittsburgh Law Review. University of Pittsburgh. School of Law

Oregon's Death with Dignity Act was first passed by a ballot initiative in 1994, but numerous judicial challenges delayed implementation of the Act. In November of 1997, following the United States Supreme Court decisions in Vacco v. Quill and Washington v. Glucksberg, which left the states' power to regulate physician-assisted suicide undisturbed, the Oregon voters upheld their law. Oregon remains the only state in the nation to authorize physician-assisted suicide.

Author(s): 
O'Brien, C. N.
Madek, G. A.
Ferrera, G. R.
Publication Title: 
The journal of nursing research: JNR

The purpose of this hermeneutic study was to investigate the essence of spirituality of terminally ill patients. In-depth unstructured interviews were used as the method for data collection. In the six-month period of data collection, the researcher was in the role of a hospice palliative care consultant who directly took care of the subject patients in a hospice ward of a teaching hospital. The six subjects were selected purposively according to various demographic backgrounds. Interview transcripts provided the data for analysis.

Author(s): 
Chao, Co-Shi Chantal
Chen, Ching-Huey
Yen, Miaofen
Publication Title: 
Oncology Nursing Forum

PURPOSE/OBJECTIVES: To advance understanding of the social well-being domain, a dimension of quality of life, from the perspective of dying individuals. RESEARCH APPROACH: Qualitative, hermeneutic, and phenomenologic. SETTING: Private residences in a community setting. PARTICIPANTS: 8 terminally ill adult patients with cancer, aged 35-75, enrolled in hospice care. METHODOLOGIC APPROACH: In-depth, semistructured, tape-recorded, and transcribed interviews were analyzed using the Giorgi method. MAIN RESEARCH VARIABLES: Social well-being and quality of life at the end of life.

Author(s): 
Prince-Paul, Maryjo
Publication Title: 
Journal of Social Work in End-of-Life & Palliative Care

Final conversations (FCs) are defined as the communicative interactions, both verbal and nonverbal, that occur between terminally ill patients and relational partners. In this study, the "Final Conversations Scale" was developed and tested. A total of 152 participants that had engaged in final conversations with individuals that were terminally ill completed the newly developed instrument.

Author(s): 
Generous, Mark Alan
Keeley, Maureen P.
Publication Title: 
The journal of nursing research: JNR

The purpose of this hermeneutic study was to investigate the essence of spirituality of terminally ill patients. In-depth unstructured interviews were used as the method for data collection. In the six-month period of data collection, the researcher was in the role of a hospice palliative care consultant who directly took care of the subject patients in a hospice ward of a teaching hospital. The six subjects were selected purposively according to various demographic backgrounds. Interview transcripts provided the data for analysis.

Author(s): 
Chao, Co-Shi Chantal
Chen, Ching-Huey
Yen, Miaofen
Publication Title: 
Oncology Nursing Forum

PURPOSE/OBJECTIVES: To advance understanding of the social well-being domain, a dimension of quality of life, from the perspective of dying individuals. RESEARCH APPROACH: Qualitative, hermeneutic, and phenomenologic. SETTING: Private residences in a community setting. PARTICIPANTS: 8 terminally ill adult patients with cancer, aged 35-75, enrolled in hospice care. METHODOLOGIC APPROACH: In-depth, semistructured, tape-recorded, and transcribed interviews were analyzed using the Giorgi method. MAIN RESEARCH VARIABLES: Social well-being and quality of life at the end of life.

Author(s): 
Prince-Paul, Maryjo
Publication Title: 
BMC palliative care

BACKGROUND: Dignity Therapy is a brief psychotherapy that can enhance a sense of legacy while addressing the emotional and existential needs of patients receiving hospice or palliative care. In Dignity Therapy, patients create a formalized "legacy" document that records their most cherished memories, their lessons learned in life, as well as their hopes and dreams for loved ones in the future. To date, this treatment has been studied for its impact on mitigating distress within hospice and palliative care populations and has provided mixed results.

Author(s): 
Montross-Thomas, Lori P.
Irwin, Scott A.
Meier, Emily A.
Gallegos, Jarred V.
Golshan, Shahrokh
Roeland, Eric
McNeal, Helen
Munson, Diane
Rodseth, Laura
Publication Title: 
The Journal of Medicine and Philosophy
Author(s): 
Battin, Margaret P.

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